Secondary use of social and health data - Legal framework - by Christian Dierks and Alexander Roßnagel

This volume offers an overview of the current legal framework to researchers and all other interested parties who wish to use social and health data. The work also enables the healthcare industry and government institutions to develop solutions and products that improve the quality of care. Thus, this publication gives actors in the health care system an important orientation for the legally compliant use of social and health data. In the first part, the social-legal framework for the use of social data for research is presented. The second part provides an overview of the handling of research data after application of the DSGVO (General Data Protection Regulation) and corresponding national adaptations of the legal framework.

You can read more about the book in German on our Publications page.

The book is available for purchase here.

New scientific work on patient participation - "Is there a need for more patient participation in Germany?" -  by Prof. Dr. Dr. Christian Dierks was recently published and it is now available online with an open link.

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Abstract:

"The involvement of patients in German healthcare lags far behind the required level. Despite the subject status of patients in the healthcare system, possibilities for codecision and active participation are rare. This paper points out structural fields of patient involvement, how a profound quality of participation can be ensured, and how implementation can be designed."

You can find more D+C Publications here.